A Stitch of my time.My life,hobbies and what is hidden in the seams of things.
People,Places and things that inspire me.How i cope with a rare illness called behcets.
Thursday, September 23, 2010
Wednesday, September 22, 2010
Sunny days while they last
Its hard to put on a happy face when your own body is attacking itself and you have fevers and sores all over where it hurts to move. I have always tried to look at the bright side of things not one to see gloom or negative .I am guessing with my birthday and everything that has happened lately i had forgotten to do just that see the light not the dark.
I am sure unless you walk in my shoes you just wont get it. Money not here to pay our bills because we have to live on my husbands income. Not feeling good and not going back on the chemo medicine because of the cost of them might not been the best choice for me.Between menopause and behcets the continued pain and sadness from lost of what i think i am good at it all added up.
So from now on its back to the light side. I will count my blessing and know someone out there is worse off then i am !
I will be thankful i have a home a warm bed to sleep in a husband who loves me even with all the ailments.Grown children healthy and grand children who think i can walk on water is enough for me today to see the light.
I will get my sewing back out and tackle the projects i want to do even if they have to sit in-between flare ups.
I will be posting pictures soon of the beach trips and the sewing i have done to share with everyone.
I will be grateful i have lost already 17 lbs and glade i am half way to my goal of 40 lbs.
I will go outside and reflect on the hard work i have done in the flower beds and enjoy the nature and birds who feast on them every day.
The Leaves Are Turning
Today, be mindful of the change of season and spend some time outdoors. Reflect on the cyclic changes within yourself as well.
Tuesday, September 21, 2010
WOW time files
Caleb mom moved so I do not have him after school now.It has broken my heart and spirit that she chose to leave the clean and sober living to move in a 2 bed room apt with 3 adults and 3 kids.Caleb has to share a bed with Tessa and i just don't think that right.He doesn't know where any of his things are and is now lumped in as a middle kid who does not have the attention he needs from his mom and the safety of our home to help him through life.It really put me in a spot to where i have had to draw a line in the sand and not help at all so maybe his mom will learn to stand on her own two feet.I give it less then 6 mths and we will be back to where we were 1yr ago.
Our garden has not produced at all this year.We don't even have tomatoes ripe yet.too much rain to start with and now fall is here.We will have to buy produce to can which is not a good thing and does not help cut the cost of food at all.
Friday, June 4, 2010
Rain Rain Go Away .....
Behcet's Syndrome
Also called: Behcet's disease
Behcet's syndrome is a disease that involves inflammation of the blood vessels. It causes problems in many parts of the body. The most common symptoms are
Sores in the mouth
Sores on the sex organs
Other skin sores
Swelling of parts of the eye
Pain, swelling and stiffness of the joints
More serious problems can include meningitis, blood clots, inflammation of the digestive system and blindness.
Doctors aren't sure what causes Behcet's. It is rare in the United States, but is common in the Middle East and Asia. It mainly affects people in their 20s and 30s. Diagnosing Behcet's can take a long time, because symptoms may come and go, and it may take months or even years to have all of the symptoms. There is no cure. Treatment focuses on reducing pain and preventing serious problems.
Wednesday, May 5, 2010
This is a very old azalea The colors are so beautiful and one first ones to open in spring.
The Star
You are The Star
Take the Test to Find Out.
Thursday, April 15, 2010
I know I am following my bliss when my work is an act of love and devotion. Every day is a joy to live!
Ok so my throat is still infected my tongue has sores on it ,my eyes have a rash and sores in them and i am pretty sure i have sores in my nose and sinuses.You would think i would be use to this by now.The taste in my mouth is so bad i cant even stand it.Its a double ended sword.If i go get the steroids again that’s another 10-15 lbs.And i cry over everything.I have gained over 50lbs since the start of all this.i use to be pretty attractive woman now look like old beat up lady.I for one am not complaining about how i look but would be nice to look healthy and not have dark circles around my eyes and big bags of fluid under and around my eyes.The cure is almost worse then the illness.
I try so hard to not show how sick i really am that other forget how sick i really am.I push myself to the point of exhaustion.Just to fix a good dinner can wipe me out let alone have to do all the cleaning up the next day.When i vacuum i cannot walk rest of the day.I have had 2 back surgeries and now have 2 more bulging disk that i will not have surgery on because my curvature of the spine is so bad it would not take the pain away any how. I am going to have my granddaughter here for 4 days and pray the weather stays nice.They give me a reason to get up everyday.A reason to keep fighting and not give up.
Thank god for grandkids they are God’s reward for having children.
Hope your days filled with sunshine and fresh air………